Service Catalog: Integrated Data Repository (IDR)

Service Description

The Integrated Data Repository is a secure, convenient and compliant data warehouse of clinical and life sciences data for use by researchers. The objective of the IDR is to improve the quality of clinical and translational research at UCSF and CTSI affiliated institutions.

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Using the IDR

With the proper Committee on Human Research (CHR) approvals, researchers are able to obtain de-identified and identified datasets. Researchers work with an OAAIIS Research Analyst to define the query for the necessary data. The IDR currently includes several public data sets including National Health & Nutrition Examination Survey (NHANES), the California Death Registry, and a California demographics data set. More public data sets are planned, including Office of Statewide Health Planning & Development (OSHPD). The IDR will also maintain a HIPAA compliant record of user access and perform automated audits of that access, as well as scan for inappropriate usage of that data. Results of searches will be provided in the MyResearch secure environment.

Additional Features and Functions

The IDR is a multi year project supporting cohort scanning, hypothesis testing, correlative studies, and retrospective analysis of well-defined populations.

Clinical data that will be incorporated into the IDR include UCare, STOR, PICIS, AxiUm (Dentistry) as well as disease registries.

Cost/Pricing

The will be no cost for the IDR service. However, output from searches on the Integrated Data Repository will be provided in the secure MyResearch environment. Services for MyResearch will be free through June, 2009. Pricing guidelines are currently being determined.